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Eric Drew is a nationally recognized leukemia and identity theft survivor, and is the first and only person to force a
federal criminal conviction under the new HIPAA patient privacy laws. Eric is a former high school football quarterback,
runway model, beauty pageant producer, and VP of several Silicon Valley global software and banking firms. He has lived
and worked in various countries in Europe and Asia, and currently splits his time between being a Founder and Executive
VP of KnightsBridge Castle Inc. and Director of the Eric Drew Foundation. As he continues to recover from a stem cell
transplant for a rare and usually fatal disease, Eric is working hard to fight against identity theft and to assist
terminally patients and their families in need.
Chapter 1: Seattle 2003
The sharp chirp of my cell phone startled me, as I was not supposed to have it on in the hospital due to possible
interference with the sensitive electronics keeping us fragile patients alive. Was it my fiancee Nicole? My Dad? What a
relief! I desperately needed some comfort. Mr. Drew? I am with (---bank) collections calling about your overdue balance.
When I told this person that this must be a mistake and that I never opened this account, they recommended that I pay the
bill and then file a dispute to keep it from negatively affecting my credit. What was this? Blackmail? I was livid.
"I don't understand. What more information do you need?" I nearly screamed. "I've talked to you people at least five
times already. Why is this so hard to grasp?! Someone has obviously stolen my identity and opened these accounts using my
name. I haven't left this hospital in weeks - there's absolutely no way I could have charged any of these purchases!" After
a few more fruitless minutes of pleading with the drone from the credit card company, I slammed down the phone in
frustration. I was so upset, I was trembling with fury; or maybe it was just the side-effects of the chemo again. Who
could tell anymore?
Laying there in my hospital bed, drenched in a cold sweat, my head swirling, my heart pounding, a dark, desperate, despair
began to envelop me. "That's it," I thought to myself. "Enough is enough!" I have had it. I can't stand this anymore. I'm
just so damn tired of it all. Tired of the chemo, the radiation; tired of the horrible side-effects; tired of the constant,
excruciating pain and fitful, sleepless nights; tired of the endless rotation of new doctors; and now, I'm sick and tired
of these heartless, mindless, incompetent banks and credit card companies that plague me as I'm lying here dying. My family,
friends, and even the doctors have advised me to let it go. I have a more important fight to focus on, staying alive. "Just
don't worry about it right now, you can fix your credit when you get through this", they all said.
Sometimes my decision to stay alive had to be re-made minute by minute, all the time holding on to my predetermined
decision to stay alive. It is like hanging on to a jagged cliff, arms burning and hands bleeding, not being able to see
above and all the time knowing the obvious consequence of simply letting go. I was constantly forced to make the conscious
decision not to let go, which would have been quite easy and would have ended the excruciating pain. I just never got to
the point where I was ready to let go. I would choose to hang on and reach for the next possible handhold, then decide
again at that moment what I was going to do.
Chapter 2: Devastation
Then one afternoon in early December ('02), I went in to the local Red Cross clinic to donate blood platelets to help
young leukemia patients. It was routine, something I'd done regularly for over 8 years. This time, however, the visit
turned out to be anything but routine. When they took the usual sample to test blood levels, the volunteer nurse mentioned
that I didn't look too well. I actually had been feeling rundown for several weeks, but just assumed it was a nasty flu
that I was having problems shaking. When the Red Cross nurse told me that I was borderline anemic and that I needed to see
a doctor before donating, I knew something was wrong. I saw my doctor the next day who agreed to see me without an
appointment. He examined me but wouldn't say anything except that I needed further blood tests. There didn't seem to be
any urgency as my doctor said he would be out of town for the rest of the week and to call him on Monday to follow up.
That was on a Wednesday. Two days later on Friday, the doctor (who was supposed to be out of town) paged me and said there
were "problems" with my blood test. He wanted me to see a Hematologist (a blood doctor) that next Monday and had already
scheduled an appointment. Doctors never move this fast.I thought to myself. A feeling of dread and anxiety sank into me. I
tried to press him for more information, but he was evasive, and would only say, "It's too early to tell; it could be a
lot of things". Now, terribly frightened, I spent a long, stressful weekend waiting for my Monday appointment to arrive so
I could get some answers. I went about my normal activities, including hosting a large company holiday party, even though
I felt so tired, pale, and had several other subtle negative symptoms.
When Monday finally came, I drove myself to the address my doctor had given me. As I pulled into the parking lot, I found
myself staring up at a very large sign: "Valley Medical Cancer Center." Cancer Center?? What am I doing at a cancer center?
As I pulled into a parking space, a cold chill ran through my body. "This is just a precaution," I told myself. It could
still be something simple. I quickly found the doctor's office, entered, and went to check in at the reception desk. There
was no one there as it was lunchtime and the doctor had obviously agreed to squeeze me in on his lunch break at the last
minute. As I was standing there, I noticed several folders on the desk with the top one labeled, "DREW, ERIC". I peered
down and happened to see the words, "Possible Acute Leukemia" on a sticky note on top of the file. It was like being hit
by a train. I couldn't breath. I felt weak-kneed, light-headed and found myself fighting back tears. My dragging fatigue
was instantly replaced by a rush of stinging fear and adrenaline. Images of my life began to flash through my mind.
When the doctor came out to greet me I was on the verge of breaking down. I immediately asked about the Acute Leukemia
note on my file. He said it was too early to tell and that it could be several things including Mono or maybe even Malaria
(since I had traveled in Africa). We would not know for sure without taking a bone marrow sample. I managed to whisper,
"So, how soon do we schedule that?" The doctor said, "There's no time to waste. We'll do it here, right now." He then
proceeded to inject a little local anesthetic, make an incision in my hip, and then punched a large diameter boring needle
into my rear hip bone next to my spine. Despite the local anesthetic which does not reach the inside of the bone, the
procedure of sucking out bone marrow felt eerie and excruciatingly painful. Tears trickled down my face. I bit into my lip
trying to stifle my moans, and soon recognized the salty, metallic taste of blood in my mouth.
In many states, a nurse licensed to do 'conscious sedation' would have sedated me for this procedure. Not in California
and some other states, where nurses are not licensed to do a simple sedation. Because it is not cost effective for
anesthesiologists to do a five minute procedure, nobody does short sedations. Doctors are forced to do these invasive
procedures in their offices using only a short acting local anesthetic. Pets are treated more humanely than humans in most
states. My dog was sedated when he had a bone marrow sample taken. This was the first of many eye opening experiences to a
politically charged, territorial, and sometimes cruelly inhumane health care system that often places cost effectiveness
above patient care. Although this doctor treated me as delicately as possible, it was still very painful and traumatic.
Our system needs a lot of work.
I waited two very long days for the biopsy results when my worst fears were confirmed. As the doctor entered the room to
give me the results, tears swelled in his eyes. "This is the worst part of my job" he murmured. It was cancer alright, a
rare and virulent leukemia normally found in children known as ALL (Acute Lymphoblastic Leukemia). Worse yet, the tests
revealed that my bone marrow was 100% cancerous.
I was told at that point that I probably had less than a week to live without immediate and possibly lethal chemotherapy
treatment. He said that if I wanted to live I needed to check into Stanford Medical Center in Palo Alto the next morning
where he had already scheduled me an appointment. After informing my family of the devastating news, my half sister Alexa,
(I had only met a couple of years before) who ironically worked at the Fred Hutchinson Transplant Center in Seattle informed
me that if the treatment did not kill me, it would leave me sterile. The doctors at Stanford did not mention any of this,
and against their recommendation I put off the chemo for three days (risking my life) to bank some of my genes.
Just like that, my life as I new it was over and all of my dreams shattered. I was about to begin an ordeal beyond my most
frightening nightmares.
Chapter 3: The Black Hole
As a result, my treatments were intensified I was pumped full of chemicals so nasty that I had just as much a chance of
dying from the treatments as I did from the cancer. That first round of chemo was one of the worst. The chemicals were so
strong that they couldn't inject them directly into my veins for fear they would collapse. Instead they painfully injected
them directly into my spine and into my heart through a large gauge catheter in my chest. I wasn't thinking of recovery at
that point, I just prayed I'd make it through the next treatment. During this three week span of intensive treatments, I
had violent seizures and reactions to medications that sent me "code blue" to the ICU (Intensive Care Unit) for 24 hour
observation. These treatments went on for months. In their efforts to destroy the cancer cells, the doctors would take me
right up to the brink of death, and then allow my body to try to recuperate so they could do it all over again. I had
horrible, violent reactions to the treatments. It felt like my skin was on fire and my head was going to burst. I suffered
from numerous infections and deadly complications that would frequently put me back in the hospital.
I knew I would have never would have made it this far without the unfailing support of so many people. Friends and
colleagues flew in from all over the world to visit and offer their assistance. When I'd first been diagnosed and was in
the hospital very ill, I'd told my girlfriend Nicole to just forget about me and go on with her life. I didn't want her
suffering again (she had lost her mother at age sixteen to cancer) by staying with me when there was so little chance of
survival. Luckily for me, she ignored my pleas, and her beautiful face was the first sight I saw when becoming conscious
again in the ICU.
The intensive treatments appeared to have done their job of wiping out the cancer. Follow-up tests showed no signs of the
disease. My physicians at Stanford told me that I was in remission and that I tested negative for the Philadelphia
chromosome. The good news was short lived as I knew by this time that my disease was incurable by chemo and radiation
alone. A bone marrow transplant was my best and only hope, and without a successful bone marrow transplant, I had no
chance of long term survival.
Chapter 4: Rally For Support
I was desperate to survive and running out of money without a suitable bone marrow donor in sight, so I reached out for
support by sending out "request for help" letter to several places in California. I raised almost $250,000 in just three
months, which was much more than I needed, so I started The Eric Drew Foundation to help others in need as well.
(www.drewfoundation.org) Most of these funds went directly to various leukemia patients as well as the Red Cross to sponsor
bone marrow drives The people in my hometown community of Los Gatos were fantastic and rallied behind me when they heard of
my plight. From my sickbed I frantically began looking for a matched donor. I recruited and coordinated volunteer committees
and organized the largest bone marrow registration drive that the San Francisco Bay Area has ever conducted (over 1000
people attended). Churches and businesses sponsored fundraising receptions, sports tournaments, and silent auctions that
were attended by the Chief of Police, The Mayor, and hundreds of other prominent people from the community. The number of
people that rallied for my cause was absolutely amazing and personally inspiring. The town set up a website for me and
put "Save our Eric" banners and flyers everywhere. The overwhelming support I received fueled my desire to keep fighting for
my life and the lives of the many others I met during my treatment. It is one of the main reasons I am still alive today.
Chapter 5: Bad News
Chapter 6: Possibility
The Fred Hutchinson Cancer Research Center in Seattle was experimenting with half matched transplants and had not had much
luck yet, but it was better than my only other choice: checking into a hospice and giving up. I do have five half siblings,
three of which are half matches. As an adoptee not knowing any of my blood relatives for most of my life, I had been blessed
to have met both of the families of my biological parents. It was sort of thrown in my lap as I had not tried to search for
them, but that is another story. I had grown up with a very close and loving family, and had not felt a need to seek out
my biological parents. It began when I met my biological mother when I was twenty, and finally just a couple of years before
I got sick I met the last link in the chain, my sister Alexa. It is very strange having three families, but also more
rewarding and valuable than I could have foreseen.
Alexa continued to urge me to come up to Seattle to try this experimental transplant since the "Fred Hutch" was considered
one of the best facilities in the country for bone marrow transplants. I again confirmed that there was little else they
could do for me at Stanford, so I made the decision to go and began painfully heavy task of putting all my belongings into
storage and giving up my only home. Having my whole life packed into boxes and saying goodbye to everyone in my community
was devastating to me, especially since I had such little chance of ever seeing anyone ever again. The depth of sadness
that I felt was indescribable.
I checked into the Seattle Cancer Care Alliance in September 2003 and was shocked when I met with the doctors for the
first time and they were candid with me about my situation. The Philadelphia Chromosome actually had relapsed a few months
before, but for some reason Stanford doctors neglected to inform me of this. How could the doctors at Stanford not tell me
that my disease had relapsed when they had known for several months???
The "half-match" transplants were very experimental and the odds of a successful procedure drop dramatically, from 50% for
a normal bone marrow transplant down to 10%, and even that figure seemed optimistic. Thirteen such procedures had been
tried before, with ten of the patients dying, two relapsing, and for the most recent patient, it was too early to tell.
The odds scared me, and I cancelled the transplant, choosing instead to try shooting from the hip with experimental
mixtures of chemotherapy. There had to be a better way.
About 10 days after arriving in Seattle, I began to receive phone calls and letters thanking me for credit applications I
had never submitted. I informed the banks that this was a mistake, which I assumed it was, and went on with my battle.
Before coming up to Seattle I had closed almost all my accounts, and had certainly not opened any new ones since my arrival.
I figured it must just be a clerical error and I continued to concentrate on the bigger issues at hand.
Chapter 7: Back To The Drawing Board
During this time, the calls from credit card companies continued to come in thanking me for applications I had not
submitted. Occasionally, the side-effects from the chemo would subside and I'd experience brief windows where I'd feel
well enough to make some phone calls. It was during these infrequent "breaks" that I'd call the banks and explain that I
didn't open any new accounts and to please NOT open any new lines of credit in my name. The person on the phone would
thank me for my call and assure me that 'it would be taken care of'. Invariably, it would not. I had little understanding
of Identity Theft at the time, and wrongly figured that this was just a minor inconvenience that the credit card companies
would take care of. I couldn't have been more wrong. The paperwork kept mounting, but there seemed to be fewer and fewer
days when I felt well enough to follow up.
Chapter 8: Sorry! Try Again
Chapter 9: Identity Theft
Again, I notified the hospital of my concerns. Eventually they did send the hospital HIPAA Compliance Officer, but he was
patronizing and simply offered to "look into it". He indicated that they took every precaution to safeguard patient
records and that they did check electronically to make sure no unauthorized person had accessed my records. He was
confident that my personal information had not been compromised at the hospital, and if it had there was no way I would
ever prove it. I demanded that the hospital provide me a list of every hospital employee that could have touched or seen
my file since it was sent here from Stanford. He sort of rolled his eyes and again gave me polite lip service. I informed
the Seattle Police as well, but was brushed off again. In order to finally get a police report and case number, I had to
call the Chief of Police in my home town of Los Gatos California, who had become a familiar supporter and friend.
The doctors and my friends and family were worried about my condition and all advised me to drop this and fix the issue
after I got though the transplant. By getting so worked up and emotional, I might actually be hurting the chances of my
transplant being successful. At that time I needed to stay focused on staying alive. I would give in and agree and let it
go for a day or so, but then I would receive another call from a collection agent and hit the ceiling. It infuriated me
that someone would have done this to me while I was already fighting for my life, and the fact that the banks, collection
agencies, hospital, and authorities showed little sympathy enraged me even more.
Chapter 10 :Bone Marrow Transplant
Chapter 11: Identity Theft-Fighting Back
My condition was declared stable and I was finally released from the hospital in mid January. I had not thought about
anything except surviving for weeks. I was just so relieved to be getting out of that prison of a hospital room and going
back to my Seattle apartment with my mother to convalesce. Any sense of well being quickly dissolved when I got back from
the hospital to find a pile of collection notices and phone messages from unknown creditors. I was so enraged that I vowed
to catch the person doing this to me if it was the last thing I did. I had to fight back.
I again notified the Seattle Police who again were totally unhelpful. They gave me every excuse as to why they could do
nothing; Higher priority cases, lack of any history of capture and prosecution, and the inability for their limited fraud
division resources to chase after crimes of this nature as they were impossible to prove. I didn't buy it. They also
pointed out that many of the fraudulent charges did not take place in the actual city of Seattle so these were not in
their jurisdiction, but I was not about to give up. I resolved to launch my own investigation from my sickbed, whatever
it took. I decided to take matters into my own hands.
I immediately ordered a comprehensive credit report through the bank in California where I was I still officially Vice
President. It contained the precise addresses in Seattle that was being fraudulently used in my name, and I pulled myself
out of bed to go to this house and take pictures. I did a property search through contacts in the title business and
located an address for the owner of the home, only to find out that he was in prison for bank robbery and murder.
In a response to a letter I sent to this owner's contact address, I received a call from a woman claiming to be the owner's
mother. She said she knew nothing about the fraud, but gave me the name and number of the renter who was living there
(last name Gibson). I called the Gibson woman who denied knowing anything about the fraudulent activities, although all
the fraudulent credit cards and merchandise was sent to her house. I reported the names and numbers to the Seattle Police
and requested again that they investigate, but they brushed me off once more.
I complained to the hospital again and informed them of the names involved and of the fraudulent address, demanding that
they search all employee records for this address and any employees with the name Gibson. They told me that they did a
check and came up with nothing. I searched out what post office delivered mail to this address and the names of the
supervisors and route carrier. I tore into them about delivering mail in my name, and probably the names of other victims
to an address where one woman lived with her two children. Of course the postal employees denied any responsibility of
delivering fraudulent mail.
I filled out an FTC report, and began barraging the FBI and the US Postal Inspector's Office with phone calls. The Postal
Inspectors agreed to meet with me and take a statement, but to my knowledge their claims of investigating the case at all
were unsubstantiated. The Duty Officers at the FBI hung up on me several times after telling me that FBI doesn't deal with
fraud anymore and to call the Secret Service. The Secret Service? What were they going to do for me? I was so livid that
if I had any hair left after the chemo, I would have been pulling it out. I even called the Seattle Mayor's office and
asked if there wasn't something they could do to get the police involved. I never heard back from them.
Here I was dying from cancer and some heartless individual had taken advantage of my helplessness by stealing my identity
and going on a shopping spree in my name. This story was bound to interest someone!
I started creating official-looking press releases outlining my dilemma, even though I had no hard evidence that it was a
hospital worker. I wrote releases with headlines like:
"Police and Hospital Refuse to Investigate" "Mayor's Office Refuses to Act" I sent the press releases to all the local newspapers and television stations with copies to the Associated Press, the network news offices at ABC, NBC and CBS, and anyone else I could think of including the Seattle Mayor's office again. At first there was no response, but after a couple of weeks I started getting a few inquiries about my story. The Mayor's office finally called the Seattle Police and instructed them to take a statement, but the excuses for why they could not do anything about it kept piling up. Finally a breakthrough, the local NBC television affiliate (Seattle's KING5 News) assigned a reporter to the case and things really started to get moving. The reporter, Chris Daniels, contacted me and asked if they could come by the hospital and do an interview. Of course I eagerly agreed. Under the pretense of health and security reasons (but more likely the fear of bad publicity and legal consequences) the hospital refused to allow the TV cameras into the hospital. Not to be denied, I demanded that my infusions be stopped and my IV's be removed. I then had myself wheeled outside of the hospital to give my first TV interview. I had already built a substantial case file and presented a good argument for my theory. Though still weak, tired and now completely bald from the chemo treatments, I felt a surge of strength and confidence as I was wheeled outside. But when I began to speak, all the fear, frustration, anger, and pain of the past few months flooded back, and my voice began to crack as I tried to fight back the tears. I pulled myself together and managed to get through the interview, and the story ran on the local news several times that evening. The public outpouring of support was immediate and very gratifying. FINALLY, people were listening. Tips also started to come in of possible suspects in the case. I even met secretly with several of these tipsters in hopes of getting a lead. I ventured down to the foggy, wet Seattle docks; in dark, isolated areas; barely able to walk, with tubes running out of my chest and wearing a backpack pumping life supporting infusions into me; and met with some very scary individuals. It was like something out of an old gangster flick. Everyone advised against it, but I was desperate for information so it seemed like something I needed to do at the time. None of these leads panned out and the frustration continued to mount. Several weeks went by and I had several near death experiences in the hospital. Then the big break came. When the fraudulent bills first started coming in, I'd asked the various stores involved to please review their store video tapes in hopes of identifying the thief who had stolen my identity. I received numerous unhelpful excuses, such as: no cameras in place, the tapes had already been erased, and, it would take too long to review all the video. Basically, nobody was willing to cooperate. Now since my interview had been aired on TV and had now been picked up by the local newspapers, some of the stores were changing their tune. The manager from a Lowes home improvement store contacted me and told me they had isolated video footage of an individual making a purchase in his store at the time and place indicated on one of the receipts. The suspect's appearance also matched the vague descriptions I had received earlier.They said that they would only hand the video to authorities, so I again had to call on the reluctant police. They agreed to obtain the video and I arranged for the video to be sent to KING5 News. They aired the footage that evening as their lead story on their 5:00, 7:00 and 11:00 news broadcasts along with another interview with me. Together with a recap of my story, they aired the video along with the following caption, "Have you seen this man?" My prediction was right all along. The police and the news station received over 30 calls identifying the individual in the video as one Richard Gibson who worked in the transplant clinic I was being treated at and had seen me almost daily over the last 6 months. He did not show up for work the next day and the police were finally forced to go knocking on his door. Gibson had obviously seen the news reports himself and had gone into hiding. He was nowhere to be found. The police put out an APB and the entire Seattle community was put on alert to look for Richard Gibson. Three days later, with his face plastered all over the news and with no place to run, Gibson turned himself in, being escorted by his attorney. Gibson was immediately fired from his job at the hospital, but - unbelievably - was released by the police the next day. I was absolutely livid! After all the pain and suffering, and hard work I'd gone through, how could they possibly let him go!? They probably let him go because they did not have any hard evidence against him.Of course they didn't. I had all the evidence in my file and they did not attempt to call me to acquire these documents. The Seattle Police had barely lifted a finger, and I did not trust them to throw the book at this guy. I had spent the last year and a half signing page after page of HIPAA federal patient privacy papers stating how medical workers are responsible for my information and could be help criminally liable if using it for "personal gain". If this was not an obvious HIPAA violation, then what was? I immediately called the US Justice Department in D.C who put me through to the US Attorney's Office. I demanded justice from the Justice Dept, and they assured me a prosecutor would be calling me right away. The next day I received a call from a guy named Vince Lombardi, who was a head Federal Prosecutor in Seattle and claimed to be the grandson of the famous football coach Vince Lombardi. He commended me on my work and assured me that I would be assigned a full time prosecutor and a FBI agent to investigate and prosecute this case. I received calls from both the following day and was assured the Federal government would pursue this case. I met with the FBI several times and handed over my case file, as well as made video statements just in case something happened to me in the meantime.
Chapter 12: Horror Again I offered to go through another experimental transplant and the doctors agreed. My half-brother Michael was over his mono by this time and he again offered to be a donor for a second attempt. The thought of going through all the chemo and radiation treatments again, let alone the painful recovery, was beyond depressing. At this point I had no other options. I wanted to give it some thought and I needed to recuperate further, so I went back home to California to get some rest. The bills and calls from collection agents kept coming, the banks completely disregarding all the evidence that these were fraudulent accounts. After being released by the police, Gibson apparently thought he was in the clear. He even went so far as to file for Unemployment Benefits! When he was denied benefits, he had the nerve to file an appeal and had to go before a judge to plead his case. Amazingly, in those legal proceedings he admitted that he had stolen my identity and had committed credit fraud. His strategy was unclear, but whatever it was, it backfired. Having incriminated himself, that testimony could be used in the case the Feds were building against Gibson for the HIPAA violation. Incidentally, when Gibson asked the judge to reverse his benefit rejection citing that he simply "needed the money", the judge retorted that his actions and excuses were outrageous. He stole the information from a dying cancer patient and used the credit cards to buy diamonds, Christmas gifts, camping gear, and other luxury items. The judge could not believe the nerve of this man who showed no remorse.
Chapter 13: Grasping at Straws Again I wasnùt finding any options that I qualified for so I packed my bags and headed back to Seattle to begin preparations for the next half match transplant which still showed very little promise. On my way to Seattle; I stopped in Portland Oregon to consult with doctors at the Oregon Health and Science University (another major transplant center where they had developed drugs that were keeping me alive between procedures). They did not have any programs to offer me there either, so I proceeded back to Seattle. Eventually it was a European (Swiss) physician who suggested I re-examine my options with stem cell transplants from donated umbilical cords. I had looked into this a year before on the suggestion of my fiance Nicole who had read about it in the news, but the majority of adults who had undergone this procedure at the time had died horrible and painful deaths. It seemed that one chord blood was not enough to seed and grow into an adult immune system. Many hospitals and clinics around the country had cancelled their adult cord blood programs because of this, and it seemed too scary and risky of a procedure for me. On advice from this Swiss doctor, I went back on to the ClinicalTrials.gov web site and re-contacted the few hospitals in the US that were still experimenting with chord blood stem cells. The new procedures involved stem cell transplants from two donor placentas and umbilical cord bloods instead of one. Even though most of the early patients had died, the patients from the most recent procedures were showing much better results. I learned that they were testing this procedure at the University in Minneapolis, and immediately contacted the hospital. After discussing my case, we arranged for a visit to get some testing done and discuss the pros and cons in greater detail. I flew to Minnesota and met with the doctors and found that they were ready to try an even more experimental procedure - a "double cord blood"transplant. There was a higher risk to this new procedure, but it appeared to be my best chance for long-term survival and recovery. I returned to Seattle to discuss options with my doctors and in parallel to pursuing the cord blood stem cell transplant, I began pre-surgery treatments for my second half-match transplant, should I decide to take that path. When I look back at all the pain and agony I'd gone through over the past few years, it's hard to say that I've been "lucky" but I really have. For one thing, I'm lucky just to be alive. By all my doctor's prognoses, I should have been dead a long time ago. But so far I've been very lucky to ride the curl of the wave of new technology. Nearly every treatment I've tried wasn't available even a year earlier when I was diagnosed. Even the treatments that ultimately failed kept me alive long enough to be around for the next "new thing". After a week of painful deliberating and forcing doctors into a consensus of agreement that I needed a "fully ablative" procedure, I made the choice to go to Minneapolis and again began packing my life into bags. Even though they had never tried the new procedure on an adult patient with ALL, my gut feeling was that it was my best chance for survival.
Chapter 14: Stem Cell Transplant On July 23 2004, after the intensive ablative procedures to rid my body of the cancer were finished, the new stem cells were infused into my body. It was about this same time, that I received a call from the U.S. Attorney working on my Identity Theft case. She told me that they were contemplating a plea bargain with Gibson, but that they would leave the decision up to me and do whatever I thought best. At first, I was totally against it, but with me not in the best shape to go through a trial, plus a variety of other factors, I began to see the up side. I told them, "As long as he pleads guilty to the first ever HIPAA violation and gets jail time, go for the deal." At this point, I was more then happy to put that whole nightmare behind me, and I was also happy to be the first one to set a precedent in a case like this. Gibson took the plea. Months of agony and near death experiences crept by, but I somehow managed to stay alive. Being too sick to travel, I videotaped a deposition from my hospital bed and sent it to Seattle to be played in court for the highly publicized sentencing hearing. The story was featured in every major paper in the US, as well as TV network broadcasts around the country. CNN did a live satellite interview with me in Minneapolis, and Dateline NBC is now producing a documentary on the ordeal.
Chapter 15: Richard Gibson Prosecuted Judge Martinez was so appalled that he had Gibson dragged out of the court and sent directly to federal prison which was totally unprecedented for a non-violent crime. He sentenced Gibson to 16 months in prison (4-months longer than prosecutors had sought). He was also ordered to pay $15,000 in restitution. The Judge said, "This court considers your behavior in this case to be some of the most deplorable I've seen in my 15-years on the bench. It's true you didn't murder anyone, but in a very real sense you committed a vicious attack on someone who was fighting for his life." When Gibson had first read my medical files and saw that I had a form of leukemia that was normally fatal, he figured I was an easy target and wouldn't be around long enough to fight back. Richard Gibson was wrong.
Chapter 16: A New Beginning So what am I going to do now? A lot of things! There was a reason that I was meant to live and given a reprieve from death, and I plan on using the rest of my time here on earth to making the biggest difference I can. Besides dealing with the mess of our inhumane medical system and the three years of sloppy medical bills they have thrown in my lap, I am also very busy with some extremely important projects.
Chapter 1: The Eric Drew Foundation Our medical system needs a huge overhaul as it facilitates suffering and despair, often withholding the best possible treatments from the sick patients who need them the most. No US doctor ever told me about my options with stem cells as it was "experimental" and did not fit within their "protocols." It was finally a European doctor who pointed me in that direction which saved my life. If I had not been extremely proactive in searching all of my options, I would not be here today. It is also worth noting that my unwillingness to accept my terminal fate given to me by tens of doctors over almost 2 years was actually characterized as a disorder. At Stanford, the doctors actually diagnosed me with "adjustment disorder" because I was having trouble accepting what they thought was the inevitable. Well this "disorder" has saved my life. Lack of optimism and empathy for patients and an unwillingness of medical staff to admit when they simply do not know and refer patients outside their own institutions is killing millions. An inhumane frequency of rotations of student doctors at teaching facilities is resulting in a severe lack in continuity of care and urgently needs to be addressed. Pharmaceutical and pain management is horrible even at the best facilities, and patients need to know that they have options. I feel it is my duty to give them some.
Chapter 18: KnightsBridge Castle KnightsBridge Castle Inc. www.knightsbridgecastle.com) - I have founded this company with several other identity theft victims and Silicon Valley execs, and am working hard to build a strong organization to fight the growing threat of identity theft. When my identity was stolen, I had nowhere to turn. I don't want anyone else to have to go through that torturous fear and frustration again. I am passionate about fighting this crime and helping identity theft victims take back their lives.
Chapter 19: Public Speaking and Legislation
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